
The sky ran blue and spilled into Lake Victoria’s coolness. We sailed the coolness all day in a wooden boat. Our last stop was a leper colony. We docked on its shores with a loud thud and awkwardly hopped onto land.
We met old men and women, disfigured with a lost look in their eye. One man had been here since 1949; he came a twelve year old boy. He never left the colony.

They gratefully received us, almost as children. They held out their hands to be touched. Human contact, flesh on flesh, a basic human need, longing to be filled. I knew that they were no longer contagious, thanks to modern medicine, but I still flinched as the first one reached towards me. I berated myself inside and grasped her arm in love.
No one warmly caresses them, holds their hands in warmth, or cuddles close to discuss the day. Most have no hand to hold. And even if they did, many could not feel.

We gave candy. The man had no fingers and could not untwist the wrapper. Here is Delmar opening the wrapper. The man smiled as he sucked on the sweetness.


What is leprosy? Loosely it is bacteria tearing into the nervous system. The bacteria destroys the nerve endings; advanced leper patients have a total loss of physical pain. Leper patients have been known to wake up with their fingers eaten by rats because they could not feel the chewing in the night.
As I look at the men and women, lives destroyed because of numbness, I bow my head and think of that many times I despised pain. I stub my toe and yowl. I cut myself and wince. My shoulder tightens and it hurts. I wish it wouldn’t hurt. I want something and don’t get it, my heart is broken. A dream is crashed. A hope is disappointed. A loved one falls. I wish it wouldn’t hurt.
I see pain as the enemy. I try everything to keep the pain at bay: distraction, activity, ignoring, running. Anything to make the pain stop, to make the heart ease its ache. If I feel pain, something is wrong.
But, pain is a gift. Do I dare say it: pain is a best friend? It alerts me that something is wrong. It shows me there is healing that must take place. It reminds me I am human. It sounds the siren that I need a doctor, that I need a God.

Leprosy is a picture of what it looks like when we numb our hearts to pain. When we don’t go deep, don’t go there, don’t face that because it hurts too much. We close ourselves to the siren alarm and slowly bleed to death.
And the leprosy begins to slither into the heart, winds itself into the nerve endings with a death grip — and wipe out the whole person. Because… If you cannot feel pain, you cannot feel joy.
Just as my leper friend could not feel a rat gnawing on her hand, she cannot feel my tender caress on her arm. When you are numb to pain, you are numb to joy.

Leprosy can be dormant for a long time before it begins to manifest. You look perfect but inside you are beginning to unravel. The disease slowly takes over.
The same with leprosy of the heart.
It may look like the person numbed out to her feelings is the most together, the most spiritual, the most with it. She isn’t ruffled, she doesn’t cry– nothing seems to bother her. She smiles, big and wide, always. Everything is always okay, there are never any problems. She is, well, perfect. A good girl everyone loves.
But inside she is blank and bleeding, numbed out to who she really is and what life is really about.
I was taught in many ways to be that kind of girl. To not embrace pain too tightly, to not feel too deeply, to get over things easily and quickly, to numb out so that I could look perfect. Why? Because pain is messy and no one likes messes, right? And, the obvious, pain hurts.
I had leprosy. It took years of awakening my heart to really know what it means to embrace pain as a friend, to learn how to process my feelings and past and pain, to dare to truly be known and to know others around me. To be okay with me, my feelings, my ups and my downs.
Leprosy is wedded to loneliness. When I refuse to embrace my pain, to listen to the siren and go for healing, I become less of a person– less of who God created me to be. I become disfigured and my deformities drive me further into hiding. Everyone wants to know and be known; lepers down the ages didn’t have that privilege. They were hidden, banished, shunned. As a leper of the heart, it is the same–except it’s me who hides, banishes and shuns my own self. I take the privilege away from myself.
Embracing pain is messy; tears do make the mascara run and the eyes red; mourning does hurt; facing the past does knock the wind out of you– but on the other side is life and wholeness. Pain begins healing.

We left the leper colony, crawled into our wooden boat and began our two hours of sloshing on the waves back to Jinja. The touch of the leper still lingered on our hands. I hope it always stays there to remind me that pain is a gift.
